and I still feel so broken... I take comfort in knowing that she is in Heaven singing praises to our Lord.. still the selfish mommy that I am, just wants her here and in my arms..one day though, I will see her and hug her and kiss her sweet chubby cheeks and NEVER let her go.. I have been feeling down all day (week) and worse now.. A very sweet lady I've met and talked to has a son named Jace. He is believed to have mito also, (unconfirmed though) they went to a specialist today and had the "keep him comfortable for as long as you can" speech.. I remember this and other than her passing, was the worse day of my life.. please raise this sweet family and precious baby up.. He goes in tomorrow morning to have another kind of feeding tube placed. Hopefully this helps and offers him some relief.
please check out his caring bridge site and leave them some encouraging words...
http://www.caringbridge.org/visit/jaceschweitzerthanks..
Jen
this is my sweet Ella Bella 6 weeks after she was born... if only there was a time machine to go back to these days and pause..
3 comments:
I was just thinking of you. Tomorrow {7/01} is Slade's 4 year Heaven date. I think its really all fresh again to Amy since little Ella's passing. Now another mother is in the middle of her story. It is all so wrong. Your always in our hearts and prayers. Love ya Shelley
Just wanted you to know I still pray for you...I can't imagine how hard this must be for you. May you be blessed with comfort...
I don't think it is selfish at all to want her here, you are her Mommmy, Forever & Always. ((HUGS))
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