Friday, October 23, 2009

Jace

A while back while Ella was still with us a friend I use to go to high school with had heard about Ella and what was going on. She messaged me and asked if I would mind talking to one of her friends who has a son that seemed to have alot in common with Ella.. naturally I agreed and became fast friends with Trish and her sweet family. Jace is her little boy and is so sweet and so happy.. just heart melting.. They have been unable to pin down a diagnosis for over a year.. he has been through so much in his short life, and has handled it better than any adult I know of :) Jace is thought to have a mitochondrial disease, just not sure what exactly it is yet.. they took him to see a specialist in Cleveland and are still waiting to hear back. They are meant to go back next month for a liver biopsy and then again in January for results.. I can speak for myself in saying the bills add up FAST.. and traveling on top of everything is just more of an expense.. Tomorrow, Saturday October 24, 2009, they are having a festival to raise funds.. I'll just post the info from his caringbridge site below..

Fundraiser Info!!!!!!
JOIN TOGETHER FOR JACE.....
Owasso 6th Grade Center, Oct 24th 6p-9p
GARAGE SALE 8a-12p that morning in the parking lot...

Everyone is invited and encouraged to come out, eat lots of food :) have fun with the family and show your support for Jace!

Smokin' Bones BBQ, music, games, face painting, jupiter jump, costume contest, dessert auction and craft fair! Tons of amazing homemade items and goodies for sale....just in time for the holidays! A Pampered Chef rep. is teaming up with us, and a % of the sales will all go to help with Jace's medical expenses! There will be a link open for 1 month where you can place your order and help Jace at the same time....


links~
Jace's caring bridge~ to catch up and see how Jace is doing now
Trish's boutique blog~ there is also a button on the side to donate to their paypal if you feel led. =)
pampered chef~ anyone can help!



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I am working on making his button for the blog~ but haven't had time yet.. watch for it and feel free to share it on your page to help!


9 comments:

Once A Mother said...

Sending you many good thoughts for a very successful day, and for a great outcome for Jace.

Missing Kasey said...

I hope they have a successful day tomorrow!

Franchesca Cox said...

I sure hope this helps with their expenses. It is astonishing how those bills do add up so quickly. *sigh*

Hoping tomorrow is a huge success, ((hugs))

Just Breathe said...

Praying for Jace. I just went over and made a small donation on her site.

Lisa said...

Thanks for the link- what cute clippies! I know my daughter would love the ballet slipper ones!
And the tutus are cute, too.

Hope tomorrow is a success! It's great that you can help someone out- a good way to have the love you had for Ella spread to others :)

Akul's mama said...

I hope they raise enough money to meet all their expenses.

Kristy said...

What a sweet little boy. I hope they can figure out what is going on with him, and get him the help he needs.

Holly said...

I think it is wonderful that you are helping your friend and his son!! I know that the bills sure do add up fast. I hope that the fundraiser was a success!

Trisha said...

Jen,

I have not been on the computer much lately as I am trying to focus more on my family......I just read this and I just want to thank you so much! You are such an inspiration to our family and many others! You have been a great friend to me and I think the world of you!