Monday, January 12, 2009

diagnosis

is the same as what sweet Bailey and Slade had. A mitochondrial dna depletion. It never was meningitis and apparently this causes the milky spinal fluid and brain swelling, so they would naturally assume this is meningitis. The genetistist came in this morning and gave us the news. He is on the phone with Houston, Denver and Philadelphia hospitals to the guru's that deal with this sort of illness. We asked if he had heard of any survivors of this and he said "not in infants.." for now we will stay in the hospital and keep on the IV meds and the dr's monitoring her labs frequently... this is my worst case scenario and I cant breathe and I cant imagine going on without her... please pray like you never have before and feel free to share this information with anyone that prays. I know God still provides miracles, and we are praying for one now..

11 comments:

laura said...

Oh Jen this just breaks my heart. I'm so sorry. We will continue to keep you guys in our prayers.

samantha h. said...

I am so sorry I am praying and I am calling my church now they will be praying as well!

Anonymous said...

I'm so sorry...I will continue to keep your family and sweet Ella in my prayers. Jennifer Richardson

Anonymous said...

Jenny my heart goes out to you. I can't even imagine the pain. I have many prayer warriors praying. God Bless! Leigh

Anonymous said...

Jennifer, I am praying for your sweet Ella!! Keep your head up and keep praying, your faith is going to see you throught this. Renee McGehee

Annie said...

Ella and your family are in my prayers. May God cover you with his love and healing at this time.

Anonymous said...

I am praying and believing for a MIRACLE!! God will be exalted! Tammy Applegate

Stacy said...

I will be praying for God to heal your pretty Ella.

Anonymous said...

You don't know me, I came across your blog today searching the name "Ella".
Ella and your family are in my prayers. Deidra

Barbie said...

Jen & Jay, I want you to know you, your precious Ella and your family are in my prayers. May you feel the arms of God wrapped around you right now and may his peace and sweet spirit fill your hearts. Keep believing and keep your faith. God is still in the "Miracle" Business. Barbie Schuler

Mrs Smiley Joe said...

Rachel shared this prayer request with us. My heart, as a mother is breaking with yours. However, we serve a most High God, God of more than enough. We are praying for you. And He doesn't have boundaries like Dr's do. We are lifting your family up and believing for you!!!