Monday, January 12, 2009
is the same as what sweet Bailey and Slade had. A mitochondrial dna depletion. It never was meningitis and apparently this causes the milky spinal fluid and brain swelling, so they would naturally assume this is meningitis. The genetistist came in this morning and gave us the news. He is on the phone with Houston, Denver and Philadelphia hospitals to the guru's that deal with this sort of illness. We asked if he had heard of any survivors of this and he said "not in infants.." for now we will stay in the hospital and keep on the IV meds and the dr's monitoring her labs frequently... this is my worst case scenario and I cant breathe and I cant imagine going on without her... please pray like you never have before and feel free to share this information with anyone that prays. I know God still provides miracles, and we are praying for one now..